We left home this morning at 7 to have a follow-up ultrasound at CHOP. We got good news: instead of progressing, the TTTS has remained in early Stage 2. In fact, Doppler readings (measuring blood flow of the fetuses) had improved slightly. Though the Deepest Vertical Pocket in the larger fetus had increased, Dr. Moldenhauer assured us that this increase would, in fact, make next Monday's surgery easier. The amount of fluid surrounding the recipient twin and the location of the placenta (posterior) are apparently very good conditions for the laser surgery. Yet again, the people at CHOP were patient, thorough, and reassuring.
In NYC, we're switching C's primary care to Dr. Lynn Simpson at Columbia. Thanks to those of you who have given us suggestions. We've been assured (confirmed by exhaustive Googling) that Dr. Simpson has ample experience with TTTS. She's apparently a highly sought-after doctor, so we may have regular (weekly) ultrasounds with members of her staff and her fellow doctors for a bit before we actually get to meet with her.
Many thanks again to our friends and families, with special gratitude to our new friends at OP, who've been unbelieveably supportive.
Next Sunday, C's mom flies in from Indianapolis to be with us for the week of the surgery, which begins the following morning.
Thanks again for your thoughts and good wishes.
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Hey you two, I just wanted to let you know that I'm thinking of you. I can't imagine how overwhelming this must be, but you seem to be navigating it with a great deal of courage, wisdom and love. Take care of yourselves, and let me know if I can do anything for you.
ReplyDelete- Dava
Hi, this is Courtney Richards, a friend of Ben and Amy. They have been keeping us informed on what has been going on through email since the initial news. We just wanted to let you know we are thinking of you during this difficult time and praying that everything continues to improve for you and your precious little boys.
ReplyDeleteTake care,
Matt and Courtney Richards and Family, Avigliana, Italy
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ReplyDeleteDo you guys know the twins are boys? Did I miss that? That is sooo wonderful!! We are so happy to read the good news from Tues, can't wait to hear more good news of a successful surgery and two healthy babies.
ReplyDeleteSending lots of love and prayers your way this week and especially for the surgery. Hugs and kisses to both of you.
Love,
jon and jamie