Saturday, February 13, 2010

Baptism


Dear friends,

tomorrow, the 14th of February, Truman Richard Kayne will be baptized at St. Peter's Church on the corner of 54th Street and Lexington Avenue in Manhattan. We'd like to extend an open invitation to all of you who have been so incredibly supportive of our family over the last year. Truman's baptism will be the very first part of the service, which begins at 11 AM and should end around 12:15, at which point the church offers a $6 brunch for anyone who might be interested.

Obviously, there's no pressure at all to attend, but we'd love to have you.

All our best,
C, M, and T

Monday, January 18, 2010

And finally...

I'm not sure why the last post printed so strangely. If it's easier, donations can be made by contacting Joshua Edwin at joe9020@nyp.org or at 212.342.0933.

Thanks again, and sorry for the sudden burst in posting.

Ack...almost forgot

Many of you have been so kind as to ask for a place to donate to in Fisher's honor. Below is a form you can print to donate to the NICU at Columbia-Presbyterian along with contact information for the point person there. Money we donate will go toward buying vital supplies and equipment for the NICU. Thanks again.


Donation Form

Gifts in Memory of Fisher Daniel Kayne

Donor Information

Donor First Name: ____________________Donor Last Name:____________________

Company (if corporate gift): _______________________________________________

Address: ______________________________________________________________

( ____Home____Business)

City:____________________State:___________________Zip:___________________

Daytime Phone: ________________________________________________________

Credit Card Information

____Visa ____MasterCard ____American Express

Card Number: __________________________________________________________

Card Expiration Date: ____________________________________________________

Name as it appears on card: _______________________________________________

Signature:_____________________________________________________________

Gift amount: ___________________________________________________________

Check Information

____Enclosed is my check payable to NewYork-Presbyterian Morgan Stanley Children’s Hospital. Please note on the memo line IMO Fisher Daniel Kayne.

For credit card donations completed forms may be faxed to: 212.342.0939 or

emailed as an attachment to: joe9020@nyp.org

Please address mail to:

Joshua Edwin

Morgan Stanley Children’s Hospital of NewYork-Presbyterian

Office of Development

654 West 170th Street

New York, NY 10032

To make a donation by phone, or for more information, please call 212.342.0933.

Long time, no blog...

As expected, the blogging has been neglected in the first month of having Truman home. I'll try to recap the events of the past month or so, but I'll indubitably leave things out. Lack of sleep, not surprisingly, makes the memory foggy. So, in no particular order:

  1. C's family (mom, dad, sister, brother-in-law and our two nieces) came for Christmas. We drove to my parents' home for Christmas day and went to a local church on Christmas Eve. The nurses from the NICU study arranged for us to have a large family counseling session with Dr. Welch (the head of the Nuture study). We discussed, among many topics, the importance of having family contact and support, possible speedbumps that we may encounter as we raise Truman, and how Dr. Welch thought we might best discuss Fisher's brief life with Truman. I found her answer to the last question to be very interesting. Dr. Welch suggested that we never hide our memories and photographs of Fisher. When Turman starts to ask questions about where Fisher is, we should be truthful but also give him an opportunity to form his own opinions. "Where do you think Fisher is, Truman?" Instead of foisting our adult grief and understanding onto him, we might let him come to his own understanding. We had toyed with the idea of telling Truman that he had a brother who spent his life looking over us, telling him that Fisher gave everything to keep Truman healthy. Dr. Welch cautioned that such an approach might make Truman feel guilty or responsible.
  2. We spent New Year's Eve and a few subsequent afternoons and evenings with our apartment building's "Baby Brigade". We're officially old people now, hanging out with married parents. The rest of the Brigade is pretty cool, but passing the bottle of breastmilk during the football game is a clear sign that infants have assumed utter control of our daily lives.
  3. Truman is awesome. He's essentially the emperor of all he surveys. His current hobbies are eating, pooping and scream-crying. He also dabbles in sleeping. I tried once to let him "cry it out" without picking him up. In his very direct manner of communicating, he demonstrated that he has several different decibel levels of crying and, should I prefer not to be exposed to all of them, that I should comfort him immediately. Message received.
  4. Truman changes daily. I had heard that before, but it's pretty astounding to watch it happen. He now follows us with his eyes. He likes to play while lying on his back. It's crazy.
  5. According to baby pictures of me, Truman looks exactly like I did when I was his age. At first I found this realization oddly flattering, as if he selected my genes while he was deciding to be born. But now it's more like I've traveled back in time to look at myself as a baby, i.e. bizarre. I (big Back to the Future fan) keep thinking that there will be a tear in the space-time continuum every time I hold him.
It's very possible that this will be the last entry on this blog. At some point, it went from a way to keep our friends and family informed to a way for me to keep myself sane. Having learned the therapeutic effects of writing, I may continue to blog somewhere else, but this chapter feels ready to close. Still, C and I read it over and over again in our hearts. We miss and love you, Fisher.

Thanks for your concern and generosity, both of which we continue to feel. It is our great fortune to feel so loved.

Stay well.